If anyone would like to talk to another family that has a child or young person with Cystinosis please see below:

Support Group Email: cystinosis.australia@bigpond.com

Western Australia

The Scott Family

Phone: (08) 9531 2135
Mobile: 0407 196 685
Email: princess_serena@bigpond.com

The Conway family

Phone: (08) 9419 58745

The Hall Family

Phone: (08) 9752 4297

New South Wales

The Connors Family

Phone: (02) 4965 1831
(mum-Judy has hearing problem, please speak clearly)

The Moore Family

Phone: (02) 6337 5814

The Diaz Family

Phone: (02) 4739 9953

Victoria

The Yacoub family

Phone: (03) 9436 5614

The Macaulay family

Phone: (03) 9877 0260

The Andrew family

Phone: (03) 9796 8748

The Holcombe Family

Phone: (03) 5352 2476

Maria Pekli and Daniel Kelly

Phone: (03) 9330 1006

Queensland

The Dodd family

Phone: (07) 4129 0079

The Glass Family

Phone: (07) 3390 3103

The Beerling Family

Phone: (07) 3356 7827

The Woodward Family

Phone: (07) 3269 8909

Tasmania

The Perry Family

Phone: (03) 62489311

South Australia

The Dodd Family

Phone: (08) 8284 1512

New Zealand

The Foster Family

Phone: (03) 4531 117

The Graham Family

Phone: (09) 432 9024

This list will be added to as families join our support group.