We’ve collated some of the leading websites from around the world that deal with topics relating to the treatment of Cystinosis and and support for families living with the condition.
Support Groups from around the World
Cystinosis Ireland
- www.cystinosis.ie
- The main charity for Cystinosis in Ireland.
The Cystinosis Foundation, France
- www.cystinose.org
- The French Cystinosis Foundation.
Cystinosis Netherlands
- www.cystinose.nl
- The main charity for Cystinosis in the Netherlands.
Cystinose-Selbsthilfe (Cystinosis Self Help, Germany)
- www.cystinose-selbsthilfe.de
- An organisation dedicated to supporting those affected with Cystinosis in Germany.
CARE: Cystinosis Awareness and Research Effort
- www.cystinosis.ca
- Canadian based charity supporting research to improve the quality of life for Cystinosis patients.
Cystinosis Foundation USA
- www.cystinosisfoundation.org
- The Cystinosis Foundation USA, supporting communities and research.
Cystinosis Research Network
- www.cystinosis.org
- A USA based charity for Cystinosis research.
Cystinosis Research Foundation
- www.natalieswish.com
- Also known as "Natalie's Wish", a USA based charity supporting research and education.
Mexican Association of Cystinosis
- www.cystinosismexico.org
- An association which helps support patients with Cystinosis in Mexico and Latin America.